Harmonization and integrative analysis of cohorts on primary Sjögren’s Syndrome
Short Description: 

Development of a platform with open standards and tools, designed to enable secure storage, governance, analytics and controlled sharing of information of primary Sjogren Syndrome.

Full Description: 

Patient databases and Electronic Health Records (EHRs) are governed by a highly heterogeneous variety of medical and legal rules across Europe and are still collected in heterogeneous repositories across the different EU countries, making comparisons difficult. This project aims to harmonize and standardise biomedical data and EHR for improving  international collaboration between researchers and other interested stakeholders and is a crucial step for the study and diagnosis of pSS.

Funding Program: